Epilepsy and Pot — One Epileptic’s Perspective

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Epilepsy is a different disease for many people. Some people are born with it, some develop it from a head or brain injury. There are dozens of different types of seizures and it’s not just one kind of disease with typical symptoms for each sufferer, and the treatment options differ from person to person. What controls your seizures can be so different from another person, just like your seizures might be different than another persons. It’s not an atypical experience for every person.

I have occipital lobe seizures, which means my seizures originate from my occipital lobe, which is in the back of your head, near you neck. There are many, many types of seizures and they can all originate in different parts of the brain, because the brain is a very complex organ. There are over 14 different seizure medications on the market, and I have had to try 8 of them before I found one that actually controlled my seizures. But the other 7 actually made my seizures WORSE. Can you imagine that? An Epilepsy medication making seizures WORSE?

Well, it’s true and doctors and pharmacists will tell you that not every drug fits every person because the brain is a complex organ and seizures can originate in different parts of the brain in different people, causing different types of seizures. It is not uncommon for people with Epilepsy to have to try several different medications before they find something that works for them. SO, that said… one drug does not fit everyone, and when one drug helps one person, the same drug can actually make another person WORSE.

I cannot use marijuana; it makes my seizures much worse. I can’t even breathe in the second hand smoke or vapor from someone using it because even that will cause me to have a seizure. This is why I am hoping that people who use it for “medication” will smoke it in the privacy of their homes and not in public places, like movie theaters, parks, shopping malls, schools, grocery stores etc.

One man’s medicine can be another man’s poison. If you need it for some ailment, then that’s your business, but have some respect for other people and keep your intoxicating smoke and vapor in the privacy of your home. What is healing to you might actually make other people sick.

I don’t know if it’s happening like this everywhere, but there’s a myth among pot users that vaping makes their drug undetectable, and that’s just not true. I see people smoking and vaping in public places in Chicago daily–on the bus, in a school, in the grocery store at 11 am on a Sunday morning. It may not smell as strongly as when it’s smoked, but it still smells and it can still intoxicate other people or make them ill. But do addicts have control of themselves? Most don’t, so they can’t stop themselves from taking that toke outside of your kid’s daycare center or in the frozen food aisle.  

(We previously wrote a piece on CBD, a substance derived from marijuana used for epilepsy, and an article on the Ketogenic Diet. Now we’re publishing a testimony by an anonymous follower of our blog.)

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6 thoughts on “Epilepsy and Pot — One Epileptic’s Perspective”

  1. If people want to use pot as medicine, that’s fine. But please keep your drug smoke out of public places. Nobody wants to get high from whatever you are toking. People put meth and bath salts and all kinds of crap into their vapes, and I don’t want that in my airspace, thank you.

  2. They are lucky they found a medicine that worked. From her post, I can tell she never tried a low THC high CBD strain because she did not need to . We have no idea if that would work for her like it has for kids. What she is triggering off of is the THC. I have read that high THC does cause some to have seizures. But, I have also seen some epileptics say that for them they need the stuff with THC. Her post proves that all drugs don’t work for all people. She also doesn’t want to be exposed to cannabis smoke. Well, all the people she is exposed to in Chicago are not medical users. They are just now getting their medical system off the ground. So she like the people allergic to peanuts are not free from peril. Chicago sure wasn’t like that when I lived there, but I guess times change.

    1. People don’t blow peanut smoke or vapor into the air, that is the difference between drug smoke and peanut smoke. And drug smoke is intoxicating, peanut smoke is not. Drug smoke or vapor is going to intoxicate people, peanut smoke will not.

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